Wednesday, June 16, 2010

All in a day's outing.


Recently Savanah and I have ran into several children with cochlear implants. This is such a neat experience for her, since most of the time, the people you see with hearing devices are older and have hearing aids. So to see another child have a cochlear implant automatically connects you to them! And we have no problem talking to the family or the child, in fact, if they are in earshot, we do every time.

Kids who have cochlear implants are bonded. It's not like that if you wear glasses or anything, but these kids have been through the ringer. They are learning something so new and yes, even though we won't publicly announce it to them on a daily basis, they are a little bit different, definitely a little more special. Savanah beams with pride when she meets a family with a child who also has a cochlear implant and I beam even more when I get to show how wonderfully Savanah is doing with her speech and language.

We have come to know that every child who recieves a cochlear implant reacts differently. Some progress faster, some regress. The outcomes are all so different. These children are all so unique in their own ways. What may work for one, may not work for the other. But all in all, it is such a neat experience to talk with a family, or a mother, or just the child, for a moment, and walk away from that moment feeling relieved other people go through this process as well.

So even if you don't have a cochlear implant, but you see someone who does. . . why don't you stop them. Let them know you know a bit about those! Ask them how they are liking it. It probably would make their day, it definitely makes Savanah's!

Wednesday, June 9, 2010

We did IT!


We took a STAND and RAISED AWARENESS to STOP CMV!

We had a pretty good turnout for the lemonade stand. I was impressed with the people who really went out of there way for myself and Savanah to stop by. THANK YOU to THOSE of YOU who SUPPORTED us! I also am so grateful for friends, not just ordinary friends, but friends who dedicated hours and an entire day for this cause. THANK YOU, YOU ARE TRULY AMAZING PEOPLE and one person, specifically, went above and beyond the call of duty and you know who you are!

Ever since we found out Savanah was deaf, I have tried to be an advocate for her. I want people to be aware of her condition, and her cochlear implant, and her abilities and this virus. I have wanted people to know that she is just like any other child, and to please always treat her that way. I have wanted to make the difference, not only just in her life but the lives of others. I think we somewhat accomplished that on Saturday.

We may not have raised our goal for fundraising, we may have GALLONS and GALLONS of lemonade leftover, but the main goal was reached. We raised AWARENESS for people in this valley of ours and my promise and commitment to STOP CMV is that I will continue to raise awarness with OB offices across this county so that pregnant women will finally be aware of this devastating virus.

TAKE a STAND to STOP CMV! Also if you have not done so. . . go to the website and upload your photos for the HAND C!AMPAIGN

Saturday, June 5, 2010

It's TODAY!


HOPE TO SEE YOU THERE!

Thursday, May 27, 2010

Last day. . .

It is Savanah's last day of Kindergarten. WOW! This year has flown by. These past few days have been a blur, there are parent teacher conferences, meetings etc. to determine what Savanah's placement should be next year.

I never realized what deaf children and parents of deaf children went through with education. Until meeting Savanah, I had never really met a deaf person. I do remember one girl in highschool who wore hearing aids and was more reserved. I remember talking to her a few times and not being able to understand her very well. She was probably just passed along in the school system.

For the first three years of Savanah's life, her dad and I spent very precious time learning how to parent a deaf child and fighting for resources. We did not have any other children yet. We devoted all of our time to her. It was time consuming, but all the work has definitely paid off, not to mention our decision to have Savanah recieve a cochlear implant. When Gracen came along in 2008, it was a completely different experience. She was a hearing child. She talks at the age of 2, she comprehends everything you are saying, she follows directions, it is a totally different world.

We have two little girls, Savanah who is deaf and Gracen who is hearing. They are both intelligent, funny and absolutely darling. Gracen sort of understands that Savanah cannot hear, especially in the morning and during bathtime. She knows what her cochlear implant is and to not touch it. It has been tricky at times having a deaf child and hearing child. My goal is to be the perfect parent giving both children equal, quaility time and to insure Savanah is never left out. I also want, Gracen to not feel like the focus is always on Savanah. I do not want her to resent Savanah for being deaf. I try my best, but often laugh at my errors.

After all of this talk about school and mainstreaming lately, the thought of having a hearing child and deaf child has stayed in my mind. I have often wondered what differences we will encounter with putting Gracen in school. There will not be IEP's and all of these meetings. I wonder what it will be like for Gracen to grow up and attend school with her deaf sister.

So as for now, Savanah just got on her van to attend her last day with Becky and her last day at Kindergarten. She sure is growing up. Her confidence is beaming. Her language and speech are beautiful. Her grades are on her level. She is shining! Now if we could only make our decision as to what to do with her next year. . . !

Tuesday, May 18, 2010

Wednesday, May 5, 2010

The LOGO. . .


Savanah's Stand to STOP CMV

JUNE 5th @ 1:00 PM

Location to be announced.

Awesome huh?

Thanks J!

Friday, April 30, 2010

It's been a good 3 years. . .

but officially today. The warranty and "insurance" on the CI is gone.

GONE!

Ugh! So tell me parents, especially ones with Cochlear, what have you done. Did you pay for the insurance through Cochlear? Did you purchase other insurance else where? Have you just winged it? Home owner's insurance?

Des and I are at a stand-still. We really just do not know what is going to be the best option, so please comment away, I desperately need it.